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The Unplanned Journey: When You Learn That Your Child Has a Disability
http://www.kidsource.com/NICHCY/parenting.disab.all.4.3.html
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This article guides parents who have a child with a disability toward the steps they need to take on their journey to help their child grow and develop. These include accessing information and services, joining a support group, reading books written by and for parents, and learning about legal and educational rights.
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The Unplanned Journey: When You Learn That Your Child Has a Disability
http://www.kidsource.com/NICHCY/parenting.disab.all.4.3.html
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Once a parent has learned that his/her child has a disability, he/she should read this article to learn about practical ways to access information about and services available for the child. Although it’s a little long, the National Information Center for Children and Youth with Disabilities is comprehensive in its suggestions for parents to get the emotional and material support they need for their family and the disabled child. The article concludes with a listing of other important resources available from NICHCY regarding parent rights and school responsibilities.
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Kids With Dyslexia
http://kidshealth.org/parent/behavior/dyslexia.html
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This article provides comprehensive information about dyslexia – definition, characteristics, diagnosis, and treatment. It offers parents the good news that children with dyslexia can learn strategies which will enable them to be successful in the regular classroom.
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Inclusion
http://www.teachermag.com/context/topics/include.htm
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This article discusses the federal requirement that children with disabilities be placed in the “least restrictive environment possible,” to the “maximum extent appropriate,” which has resulted in efforts toward “mainstreaming” or “full inclusion” in a regular classroom.
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Parenting A Child With Special Needs: A Guide To Readings And Resources
http://www.kidsource.com/NICHCY/parenting.disab.all.4.4.html
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This article discusses the many people with whom parents can work in the best interest of their child with a disability, including professionals, family members, day care providers, medical personnel, child care workers, respite care providers, and advocacy organizations.
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Addressing Financial Concerns
http://www.kidsource.com/NICHCY/parenting.disab.all.4.4.html#Addressing
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Parents concerned about managing the costs of high-priced health care for a disabled child should read through this short section which directs parents to sources of financial assistance. From discussions of state agency services like Medicaid and Supplemental Security Income (SSI) to private insurance benefits and volunteer agencies, this information will help parents address their financial concerns and maneuver through the bureaucracies and inertia that can quickly overwhelm them.
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Working With Professionals: The Parent/Professional Relationship
http://www.kidsource.com/NICHCY/parenting.disab.all.4.4.html#Working
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This small portion of an article by National Information Center for Children and Youth with Disabilities focuses specifically on the parent-professional relationship and how to make it work for the disabled child and the family. It offers many suggestions for parents on how to find a good professional, how to work with and maintain a balanced relationship with a professional, and how to stay organized and informed about a child’s disability. It demonstrates how parents can be equal partners with professionals in information-gathering, information-sharing, and in decision-making.
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SPECIAL EDUCATION IN THE STATE OF OHIO: How to Refer Your Child
http://home.webmonster.net/sped.oh/article1.html
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Although this article is specifically about special education services in the state of Ohio, it provides a systematic, comprehensive view of the federal law, with emphasis on how to be sure your child is tested if you suspect a disability. The author tells parents how to make a referral and what to do after the evaluation and testing of the child takes place.
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Parenting A Child With Special Needs: A Guide To Readings And Resources
References
http://www.kidsource.com/NICHCY/parenting.disab.all.4.7.html
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The National Information Center for Children and Youth with Disabilities compiled this comprehensive list of clearinghouses, information centers, government agencies, disability-specific and other organizations that provide services and information about disability issues to families. They include some useful suggestions about what kind of specific information the organization will want to best assist you in your quest.
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Future Planning
http://www.kidsource.com/NICHCY/parenting.disab.all.4.4.html#Future
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This article acknowledges the concerns of parents of children with disabilities about the future and offers some suggestions on how to plan for it. NICHCY discusses the increase in opportunities and services available for the disabled over the last twenty years and includes broad principles for parents to follow in developing goals for their child. It’s a good place to get your mind going about future planning for a disabled child but lacks a serious number of substantial steps for parents to take in securing that future.
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You Are Not Alone: For Parents When They Learn That Their Child Has A Disability
http://www.kidsource.com/NICHCY/parenting.disab.all.4.2.html
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This is a must-read essay for parents when they learn that his/her child has a disability. The author has handled disabilities as a parent and a professional and above all wants to reassure parents of disabled children that they are not alone in the emotions they feel. She coaches parents through common reactions to learning about the disability and offers practical ways for parents to work their way through the hard times. It’s a little long, it’s quite personal, and it’s very good.
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